Trigger Warning: Child Abuse (all forms), Domestic Violence
“In general, the diagnostic concepts of the existing psychiatric canon, including simple PTSD, are not designed for survivors of prolonged, repeated trauma, and do not fit them well. The evidence reviewed in this paper offer strong support for expanding the concept of PTSD to include a spectrum of disorders, ranging from the brief, self−limited stress reaction to a single acute trauma, through simple PTSD, to the complex disorder of extreme stress that follows upon prolonged exposure to repeated trauma.”
-Judith Herman, “Complex PTSD: A Syndrome in Survivors of Prolonged and Repeated Trauma." p. 388
These words were published in 1992. Here we are, thirty years and almost 3 editions of the DSM later, and Dr. Herman’s words still apply. Complex trauma survivors are STILL not represented in the DSM. Buckle up, because we are about to explore the frustrating and baffling exclusion of C-PTSD from DSM, and it's going to be almost as long as preambles to banana bread recipes. If you have complex trauma and are baffled because someone diagnosed you with... not that... this article is for you.
What is the DSM?
If you do not know, the DSM is the Diagnostic and Statistical Manual of mental disorders and is put together by the American Psychiatric Association (APA). The DSM is the standard diagnostic manual used in the United States. If you pay for therapy using insurance, your therapist is required to put a DSM diagnosis in order to bill your insurance. As of 2022, therapists are required to provide a diagnosis on your Good Faith Estimate even if you pay via cash or credit card. To be open about my own perspective, I find the DSM to be problematic for many reasons in addition to the exclusion of C-PTSD which would take many more posts to explain, though the linked article is a decent introduction to the problems.
It is worth noting that C-PTSD is acknowledged in another manual: the ICD. The International Classification of Diseases includes C-PTSD as a diagnosis distinct from PTSD. The distinguishing factors are that C-PTSD includes three additional types of symptoms on top of the regular PTSD criteria. The additional symptom clusters are:
Side note, my undergraduate degree was geography, and it surprises me very little that there would be a major discrepancy between the American version of something and the rest of the world’s version… but we will save that discussion for another day.
So what is complex trauma? Why does having a diagnosis matter?
C-PTSD, also known as complex trauma, is a trauma disorder. It impacts an estimated 1 in 25 people, and it results from prolonged or repeated interpersonal abuse. The term was by Judith Herman in the 1980s, and Dr. Herman further elaborated on the condition in 1992 in her paper “Complex PTSD: A Syndrome in Survivors of Prolonged and Repeated Trauma.” Dr. Herman’s research focused on people who survived “prolonged, repeated victimization” such as survivors of domestic violence and child abuse. She noted important differences between survivors of childhood trauma and survivors of trauma that occurred in adulthood. One of the important differences is that C-PTSD impacts interpersonal relationships more strongly than PTSD, and it seems to be linked to the nature of the trauma. For example, a car crash might lead to PTSD, but it would be unlikely to lead to C-PTSD.
It is important to note that treatment needs are different for C-PTSD vs. PTSD. I like examples, so here are examples to keep in mind as we discuss why these different types of trauma require different treatments.
1. A person survives a hurricane. They lost all of their possessions, their pets, and they feared for their life during the event. This person might develop PTSD. They might experience intrusive memories and thoughts of the event, avoid places that remind them of the event (perhaps the news, old friends, etc.), experience mood changes (which could incidentally impact relationships), and experience hypervigilance (jumpiness, difficulty sleeping, anxiety).
2. A child grows up in an area with high levels of gun violence. Their parents fight frequently, and sometimes they even observe physical violence between their parents. The child is also sexually abused by a trusted family friend. This child might grow up to experience C-PTSD. In addition to typical PTSD symptoms, the child might also experience difficulty maintaining relationships, emotion dysregulation, chronic feelings of guilt and worthlessness, somatic symptoms, and chronic suicidal thoughts (could be passive or active).
These are of course highly reductionist examples, but they illustrate a major difference between C-PTSD and PTSD that impacts treatment. C-PTSD impacts us relationally. Yes, relationships can be impacted by PTSD, but this is typically secondary to the symptoms. PTSD symptoms can be disruptive to relationships. Reducing the symptoms using trauma-focused therapies such as trauma-focused CBT (Prolonged Exposure, for example) will typically improve relationships. In C-PTSD, however, disruption in relationships is primary. With prolonged, repeated, interpersonal trauma, there is a loss of trust in self and others. Healing from C-PTSD requires more than processing a one-time event. It requires processing deep-seated feelings of guilt and worthlessness and building trust in ourselves. It requires building safe, supportive relationships.
Another way to put it: PTSD is a disruption in feeling safe in the world. There is typically a sense of safety to regain. For survivors of C-PTSD, particularly if the trauma occurred during childhood, it may be difficulty to identify a time where the world felt safe and trustworthy. The healing can feel something like baking from scratch. For this reason, C-PTSD may require longer-term work, and it does not seem to respond to medications in the same way as PTSD. This makes a lot of sense. Medications can reduce symptoms, but they cannot teach us how to recognize and function in loving, supportive relationships. Of course, there is also the issue that because C-PTSD has only recently become a diagnosis (in ICD-11 only), so there has been little opportunity to run controlled trials to find out the most optimal treatments for C-PTSD.
Because the presentation and core issues of complex trauma are different from those of PTSD, people with complex trauma often have an incorrect diagnosis, no diagnosis, or a long list of diagnoses that would be better summarized by a complex trauma diagnosis. This is problematic for many reasons, but I feel this would require a separate article.
Wait, so why the fuck is it not in the DSM? You still have not explained.
Here is my opinion: It makes no goddamn sense. It is a convoluted mess. In graduate school, I took every trauma class I could fit into my schedule, and we did a deep dive on this topic. I still cannot quite put it into words, but I will do my best to condense what I was able to verify via an absolute clusterfuck of online articles.
So. There was a “Complex Trauma Task Force” that attempted to have C-PTSD or “developmental trauma” added to the DSM-5. The subcommittee of the Trauma, Stress and Dissociative Disorders Sub-Work Group for DSM-5 was headed by Matthew Friedman, PhD. You can read more about Dr. Friedman on his webpage, which I will put in the references because it will not allow me to insert it as a link here. I find it interesting that Dr. Friedman was highly involved with the VA. One could speculate that because his background is working with veterans, he is most highly experienced with adulthood-acquired trauma. I am not implying it is a bad or negative thing that Dr. Friedman is involved with the VA, but I do think it is worth considering that his focus does not seem to be developmental trauma. It makes sense he would have a different outlook and perspective from Dr. Judith Herman, who worked closely with complex trauma survivors.
What I gather from reading over the exclusion is that it ended in a Catch-22. Dr. Friedman’s subcommittee argued that there was not enough evidence for C-PTSD to include it in the DSM-5. The Complex Trauma Task Force argued that without C-PTSD being a diagnosis, it was difficult to acquire funds needed to conduct the breadth of research the Trauma, Stress and Dissociative Disorders Sub-Work Group wished to see. According to the VA website “there was too little empirical evidence supporting Herman's original proposal that this was a separate diagnosis.” Dr. Friedman instead suggested “complex trauma” is a “dissociative subtype” of PTSD and did not warrant a separate diagnosis. Dr. Friedman suggested there was not enough evidence to suggest complex trauma would not also respond to Cognitive Processing Therapy and Prolonged Exposure, which are evidence-based treatments for PTSD. However, it does not seem that these modalities have been tested specifically with C-PTSD (and how can they be tested if there are no clear diagnostic criteria differentiating C-PTSD from PTSD?).
It is worth noting that much of what distinguishes C-PTSD from PTSD in the ICD is similar to the criteria for BPD: difficulties with interpersonal relationships, suicidal thoughts, and difficulties with emotion regulation. We should absolutely reduce stigma for all neurodivergences, including BPD, so I'm not going to say "Oh we should not diagnose people with BPD because of stigma." Let's reduce stigma for people with BPD rather than pretending BPD does not exist. That said, people whose symptoms are explained well by ICD's Complex Trauma diagnosis are often misdiagnosed with BPD. If PTSD is a sufficient diagnosis for people with C-PTSD, then why are many misdiagnosed with BPD? Rhetorical question of course. While the emotion regulation skills that are inherent to BPD treatment are useful for PTSD, there is no guarantee someone diagnosed with BPD will be given the opportunity to process the underlying trauma. For obvious reasons, this is problematic, and people with C-PTSD have a right to treatment for the actual reasons they came for treatment.
Hope and Healing
The good news is, there are clinicians who think outside the box of the DSM. There are treatments that target the mind-body connection and the relational issues at the core of C-PTSD. There IS research about C-PTSD, even if it isn't the type of research the subcommittee wants to see to add the diagnosis. There Dr. Herman's research, and there is the Kaiser-Permanente ACEs research, which is so validating if you are in doubt about how developmental trauma may have impacted you. There are empowering books such as Pete Walker's From Surviving to Thriving. There are therapists who work effectively with survivors of complex trauma. And there are supportive communities on social media. Complex trauma is real. It is not in your imagination, and it does carry different challenges from PTSD. Most importantly, you are not alone in the having of C-PTSD, and you will not be alone in the healing from it.
Bredström, A. Culture and Context in Mental Health Diagnosing: Scrutinizing the DSM-5 Revision. J Med Humanit 40, 347–363 (2019). https://doi.org/10.1007/s10912-017-9501-1
Bremness, A., & Polzin, W. (2014). Commentary: Developmental Trauma Disorder: A Missed Opportunity in DSM V. Journal of the Canadian Academy of Child and Adolescent Psychiatry = Journal de l'Academie canadienne de psychiatrie de l'enfant et de l'adolescent, 23(2), 142–145.
Cloitre, M. (2020). ICD-11 complex post-traumatic stress disorder: Simplifying diagnosis in trauma populations. The British Journal of Psychiatry, 216(3), 129-131. doi:10.1192/bjp.2020.43
Cloitre, M., Garvert, D. W., Weiss, B., Carlson, E. B., & Bryant, R. A. (2014). Distinguishing PTSD, complex PTSD, and borderline personality disorder: A latent class analysis. European journal of psychotraumatology, 5(1), 25097.